My daughter Lucy was born with a rare genetic disorder called Spinal Muscular Atrophy (SMA). Lucy has SMA type I, which is the most aggressive type and left untreated, she wouldn’t likely make it to her 2nd birthday.
On June 18th 2020, Novartis Pharmaceuticals Canada Inc. announced the filing of a marketing application to Health Canada for Zolgensma™ (AVXS-101, onasemnogene abeparvovec), for the treatment of SMA. The file has been granted Priority Review Status and the company anticipates a decision by the end of the year.
Lucy can’t wait another 6 months. Help Sign This Petition and make sure Zolgensma gets approved tomorrow.
Zolgensma™ is a cutting edge gene therapy treatment that reverses the underlying cause of SMA.
Research has shown that the longer you wait the more irreversible damage this neuromuscular disorder will have. This drug may save Lucy’s life.
The decision is now in the hands of us, as Canadians and the elected leaders of our Country to not stand on the sidelines another day and let babies go without this life-altering treatment.
Lucy needs you, the entire SMA community needs you to stand up and voice your support for the approval.
The time is NOW.
PLEASE SIGN, SHARE & DONATE
